chapter  3
23 Pages

The parent’s perspective

Parents rarely expect their child’s disabling condition or life-threatening illness. The

confirmation or diagnosis, whether at birth or later, often creates an immense crisis of

changed expectations and hopes, and parents may experience intense reactions during the

early days. In this chapter, we will be looking at some of the ways in which professionals

can help parents through this initial traumatic period and beyond. Various psychological

theories and frameworks will be introduced as a basis for informing and guiding practice.