ABSTRACT
This chapter focuses on Dor Yesharim, the global programme established by a rabbi in the context of a lethal autosomal recessive disease (Tay-Sachs) using a culture-specific premarital carrier matching scheme. This programme has become for many a paradigm for the successful assimilation of new genetic technologies by a traditional community. As such, this programme provides an intriguing case study for examining, in situ, the manifold implications of bioethical dilemmas such as stigmatisation, eugenics, medicalisation, privacy and autonomy.
