ABSTRACT
if the constructivist methodologies are preoccupied with the restoration of the meaning of human experience, then critical methodologies are preoccupied with the reduction of illusions in the human experience. This chapter critically examines the misrepresentation and the lack of specific representation of people with profound intellectual and multiple disabilities (PIMD) within the current policy framework for people with intellectual disability (ID) in the UK. It listens to the people who know those with PIMD the best. Their families and care workers. Interviews were conducted with family carers in order to explore the seeming mismatch between the formal policy discourse and the understandings of those who care for adults with PIMD. The former actively lobbied by sitting on various Boards and sub-groups concerned with ID and PIMD. The latter had actively withdrawn from participation. Carers in both boroughs felt their views remained unheeded. Their responses were framed in replies suggesting their concerns were falling on deaf ears.
