ABSTRACT
This chapter focuses on the lived experience of adults with profound intellectual and multiple disabilities (PIMD). From where people live, to what they do during the day, to whom they spend their time with and who provides their support. There is analysis of the report Raising Out Sights and evidence that families still have the same concerns highlighted there. Most people live with their families. Person-centred planning replaces more traditional outmoded styles of assessment and planning which are based on a medical model approach to people’s need. Personalisation is seen as the new approach to social care provision. Organisations working with carers have expressed concern that the decision was taken before the impact of the pilot programmes on carers had been adequately assessed. The most common ‘settings’ therefore for people with PIMD are the family home, residential or supported living arrangements, day centres, residential respite and of course hospitals.
