ABSTRACT

Adults who have spina bifida carry the past with them, both personally and cul-

turally. Their personal past includes their abilities, physical impairments, coping

strategies, and social skills. These affect their well-being and functioning as

adults. As reviewed in earlier chapters of this book, impairments and disabilities

that occur with spina bifida include nonverbal and verbal learning disabilities as

well as problems with attention; and executive function these can affect perform-

ance in postsecondary education, employment, communication, and socializa-

tion. Adults with spina bifida typically have limited mobility with paraplegia

and may have impaired fine motor skills. They may have problems accessing

transportation. They may have recurrent medical problems such as urinary

tract infection, skin breakdown, and ventricular shunt malfunction that can

limit them from participating in school or work for an extended time. They

may have urinary or fecal incontinence, which can affect social interactions

and self-esteem. For each of these challenges, they possess coping skills, with

some individuals being more resilient than others.