ABSTRACT

This chapter focuses on the increasing number of disabled children being cared for at home. Caring for disabled children is a subject of interest. A cascade of change has been initiated by legislation affecting policy and provision for the care of disabled people in the community. The Children Act Report 1992 endorses the shifting of responsibility towards users and carers, in the guise of promoting parental responsibility. The chapter also focuses on the probable gap between the carefully argued and apparently eminently logical proposals for the Department of Health in their policy objectives for disabled children and the practice implications for carers. A much lower response rate was obtained from the postal questionnaires to the voluntary agencies and social services. This probably reflects the personal, sensitive nature of the research questions. The questionnaire was designed to focus primarily on factual information but the content was associated with stressful material.