ABSTRACT
In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.
TABLE OF CONTENTS
part I|25 pages
Loss of a Body Part
part II|6 pages
Loss of a Perfect Child
part III|26 pages
Chronic Loss and Disability
part IV|72 pages
Dealing with Life-Threatening Disease
part V|23 pages
Bereavement