ABSTRACT

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.

Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as:

  • state-of-the-field analyses of modern medicine, bioethics, and disability theory
  • health, disease, and the philosophy of medicine
  • issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states
  • enhancement and biomedical technology
  • invisible disabilities, chronic pain, and chronic illness
  • implicit bias and epistemic injustice in health care
  • disability, quality of life, and well-being
  • race, disability, and healthcare justice
  • connections between disability theory and aging, trans, and fat studies
  • prenatal testing, abortion, and reproductive justice. 

The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.

chapter |8 pages

Disability Bioethics

Introduction to The Disability Bioethics Reader

part I|30 pages

History, Medicine, and Disability

part II|31 pages

Bioethics

chapter 4|9 pages

A Critical History of Bioethics

chapter 5|11 pages

Methods of Bioethics

chapter 6|9 pages

Disability Bioethics

From Theory to Practice

part III|21 pages

Philosophy of Medicine and Phenomenology

part IV|42 pages

Prenatal Testing and Abortion

chapter 10|13 pages

A Fatal Attraction to Normalizing

Treating Disabilities as Deviations from “Species-Typical” Functioning

chapter 12|10 pages

The Wrongs of ‘Wrongful Birth’

Disability, Race, and Reproductive Justice

part V|45 pages

Disability, the Life Course, and Well-Being

chapter 13|10 pages

Disability, Ideology, and Quality of Life

A Bias in Biomedical Ethics

chapter 14|9 pages

The Case of Chronic Pain

chapter 16|10 pages

Disability and Age Studies

Obstacles and Opportunities

part VI|51 pages

Issues at the Edge and End of Life

chapter 17|8 pages

Death, Pandemic, and Intersectionality

What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19 1

chapter 18|12 pages

Disorders of Consciousness, Disability Rights, and Triage During the Covid-19 Pandemic

Even the Best of Intentions Can Lead to Bias

chapter 20|9 pages

Between “Aid in Dying” and “Assisted Suicide”

Disability Bioethics and the Right to Die

part VII|37 pages

Disability, Difference, and Health Care

chapter 22|8 pages

Disability Bioethics and Race

chapter 24|9 pages

Hunger Always Wins

Contesting the Medicalization of Fat Bodies

part VIII|42 pages

Intellectual and Mental Disabilities

chapter 27|10 pages

Research Ethics and Intellectual Disability

Finding the Middle Ground between Protection and Exclusion

chapter 28|9 pages

Inconvenient Complications to Patient Choice and Psychiatric Detention

An Auto-ethnographic Account of Mad Carework

part IX|29 pages

Disability Bioethics