ABSTRACT

This insightful guide shows professionals how to collaborate with parents and guardians of children with disabilities in empathic, respectful, knowledgeable, and supportive ways. Packed with first-hand accounts and advice from parents and guardians, this book shines a light on lived experiences and reveals paths toward meeting families where they are in order to move forward together. Boroson emphasizes that appreciating the real needs of these families is a crucial step beyond mere adherence to a generic set of professional best practices or principles. Whether working in the field of medicine, education, law, mental health, or related services—in any capacity—readers will come away with the holistic knowledge, inclusive language, productive strategies, and differentiated understanding needed to work effectively with the diverse families they serve. Included is a robust array of resources for families, such as books, articles, associations, organizations, and support networks, along with a website for additional, up-to-date resources.

chapter |10 pages

Introduction

chapter 1|22 pages

Grief and Loss

chapter 2|20 pages

Guilt and Shame

chapter 3|45 pages

Isolation and Marginalization

chapter 4|31 pages

Stress and Fear

chapter 5|34 pages

Disparities and Disenfranchisement

chapter |3 pages

Epilogue