ABSTRACT

This fascinating collection examines the socio-economic factors that impact the well-being of patients with sickle cell disease (SCD) in Sub-Saharan Africa and the critical importance of patient advocacy in the region.

The book looks at a number of key issues, including the social determinants that influence the spread of the disease, the quality of life of children with SCD, the impact of stigma and the broader psychosocial burden of such a prevalent condition. There are also chapters on policy and Public Health management, including collaborations with non-governmental organisations (NGOs) and global partners.

The second in a two-volume set offering a multi-disciplinary perspective on SCD, this insightful collection highlights many of the hidden issues faced across the region. It will be important reading for students of both Public Health and Medicine, as well as practitioners working for governments or NGOs.

chapter 1|12 pages

Bridging the Gap

chapter 4|9 pages

The Challenge of Data with SCD

A Public Health Crisis

chapter 8|8 pages

Reducing Sickle Cell Disease Stigma in Africa

Successes and Challenges

chapter 9|9 pages

Support Activism

The Role of NGOs and Policymakers