ABSTRACT
Severity is rated as 1. Mild – produce little distress in the patient 2. Moderate – more disturbing to the patient but can
be redirected by the caregiver 3. Severe – very disturbing to the patient and difficult
to redirect
Distress is scored as 0 — no distress 1 — minimal 2 — mild 3 — moderate 4 — moderately severe 5 — very severe or extreme
For each domain there are 4 scores. Frequency, severity, total (frequency severity) and caregiver distress. The total possible score is 144 (i.e. A maximum of 4 in the frequency rating 3 in the severity rating 12 remaining domains). This relates to changes, usually over the 4 weeks prior to completion.
