ABSTRACT

There is an increased recognition within the health care industry that consumer opinions

must be considered in order to satisfy patient’s expectations and needs (Ryan, Collins,

Dowd, & Pierce, 1995). By identifying the major elements of service delivery that

underlie patient expectations and opinions, we can learn what is desired from the health

care system. This information, in turn, can help direct decisions that make health services

more effective and efficient (Krahn, Eisert, & Fifield, 1990). This is especially important

when making decisions for children with special health needs. Such children will require

services throughout their life span that address overall well-being as well as the impact of

their condition on family functioning (King, King, & Rosenbaum, 1996).