ABSTRACT

Illness takes place within the family and has reciprocal effects on those who are close to the patient. Studies on the effects of social support in illness adaptation have shown clearly that those who are close to the patient can have a significant influence on the process and outcome of the illness (e.g., Berkman et al., 1992; Schwarzer and Schulz, in press). Although we know that there is considerable variation in the pattern of carers’ responses, we know far less about the reasons underlying this variation. Why are some individuals extremely responsive to the needs of their ill relatives whereas others may be indifferent, avoidant or even critical? Part of this variation may stem from pre-existing relationships but there is now an emerging research literature showing that the carers’ perceptions of their relatives’ illness are not only a key determinant of their own behaviour but also have broader effects on their own well-being as well as that of the patient.