ABSTRACT
In Chapter Six, I presented a personal narrative focussed on my child and her caregivers. This was the best way I knew to provide my reader with a dimension of living with a person as dependent as my daughter. In this chapter, I wish to expand the vista and think more generally about what it means to mother a severely disabled child, all the while continuing to use my own experiences with my daughter as a source of reflection and as a tether that prevents me from wandering away from the lived reality. What do these experiences of disability and difference tell us about dependency and dependency work? What do they tell us about the particular form of dependency work called mothering? Can looking at the anomalous situation of mothering a severely disabled child help us in reflecting on what is required for a society to be just to all its members and make way for a true equality?
