The Fulton Special Education Digest

18–30 Plus

Abdominal Exstrophies

Abdominal Migraine

Abortion

Abuse of People with Disabilities

Accidents

Achondroplasia

Acne Support Group

Acromegaly

ACT (Aid for Children with Tracheostomies)

ACT (Association for Children with Life- Threatening or Terminal Conditions and their families)

Action 19 Plus

Action for Sick Children

Action for Sick Children, Scotland

Adams-Oliver Syndrome Support Group

ADD Information Services

ADD/ADHD Family Support Group UK

Addison's Disease Self-Help Group

ADDnet UK

ADHD National Alliance

Adipogenital/Retinitis Pigmentosa/Polydactyly Syndrome

Adoption (Post-Adoption Centre)

Adoption and Fostering

Adoption and Fostering, British Associaton for

Adoption Service, Independent

Adoption UK

Adrenal Hyperplasia, Congenital

Adrenoleukodystrophy (ALD) Family Support Trust

Advocacy Partners

AFASIC (Association for All Speech and Language Impaired Children)

Agammaglobulinemia X-Linked

Agorophobia

Agyria

Aicardi Syndrome

AIDS Helpline, National

AIDS/HIV in Children

AIS Support Group (UK)

Alagille Syndrome

Albinism Fellowship

Alcohol Effects, Foetal

Allergic Disorders, Association for

Allergy

Allergy and Environmental Therapy, British Institute for

Allergy Association, Food and Chemical

Allergy UK

Allergy, Action Against

Allergy, National Society for Research into

Allergy-Induced Autism

Alopecia Society, The Children's

Alpha 1-Antitrypsin Deficiency

Alpha Thalassaemia and Learning Disability on the X Chromosome

Alstrom Syndrome UK

Alternating Hemiplegia Support Group

Alternative Therapies

Amyoplasia Congenita

Amyotrophic Lateral Sclerosis

Anaemia, Congenital Aplastic

Anaphylaxis Campaign, The

Andersen Syndrome

Anderson-Fabry Disease

Androgen Insensitivity/Resistance Syndrome

Anencephaly Support Group

Angelman Syndrome Support Group

Aniridia Support Network

Ankylosing Spondylitis Society, National

Anophthalmia

Anorchidism Support Group (ASG)

Anorexia

Anoxic Seizures, Reflex

Anthony Nolan Bone Marrow Trust

Anti-Bullying Campaign

ANTS (Anns Neurological Trust Society)

Apert Syndrome

Aplastic Anaemia Support Group

Apnoea, Neonatal

ARC (Antenatal Results and Choices)

ARISE – The Scoliosis Research Trust

Arm and Hand Deficiencies

Arnold Chiari Malformation

Aromatherapy and Massage In Profound & Multiple Disability

Arthritis Association, Children's Chronic (CCAA)

Arthritis Care

Arthritis in Children and Young People

Arthritis Research Campaign

Arthrogryposis Group, The (TAG)

Arthro-Ophthalmopathy, Hereditary Progressive

Artificial Feeding

ASBAH (Association for Spina Bifida & Hydrocephalus)

Asperger Syndrome

Aspergillosis

Assert (Angelman Syndrome Support, Education & Research Trust)

Asthma Campaign, National

Ataxia UK

Ataxia-Telangiectasia (AT) Society

Ataxic Cerebral Palsy

Atherosclerosis, Familial

Athetoid Cerebral Palsy

ATR-X Support Group

Attention Deficit Disorder & Attention Deficit / Hyperactivity Disorder

Auriculovertebral Syndrome

Autism

Autism Independent UK

Autism, Allergy-Induced

Autistic Children, Scottish Society for

Autistic Research Organisation, The International

Autistic Society, The National

Autistic Society, The National (Scotland)

Autistic Society Wales, The National

Back Care

Bardet-Beidl Syndrome

Barnardos

Barnardo's AIDS/HIV Project

Barnardo's Cymru

Barnardo's Cystic Fibrosis Projects

Barnardo's Northern Ireland

Barnardo's Scotland

Barnardo's South West England

Basal Cell Naevus Syndrome

Batten Disease Family Association

BBC Disability Programmes Unit

Beckwith-Wiedemann Support Group

BEES Support Group

Befriending Network

Behavioural Difficulties

Bells Palsy

Ben Hardwick Fund

Bereavement

Bereavement Counselling Service, Jewish

Bereavement, Counselling People with Learning Disabilities

Bereavement, Twin/s

Beyond Words

Biliary Hypoplasia/Atresia

Birth Defects Foundation

Birthmark Support Group

Bladder Exstrophy

Blepharospasm

Blind Children's Society, The National

Blind People, Action for

Blind, Henshaws Society for the

Blind, National Federation of the, (UK)

Blind, Royal National Institute for the

Blind, Wales Council for the

Blindness

BLISS – The Premature Baby Charity

Bobath Centre

Body Dysmorphic Disorder (BDD)

Body Positive

Bone Dysplasia Group

Bone Marrow Donation

Bowel Defects & Abnormalities

Brachial Plexus Paralysis

Brain & Spine Foundation, British

Brain Dysfunction, Minimal

Brain Injured Children, British Institute for

Brain Injured Children's Rehabilitation Centres

Brain Tumour Action

Brain Tumour Foundation

Brain Tumour Society, UK

Brain, Congenital Absence of

Brainwave Centre for Rehabilitation and Development

Breath-Holding Attacks, Chronic/Severe

Breughel Syndrome

Brissaud Syndrome Type 2

British Heart Foundation

Brittle Bone Society

Broad Thumb/Great Toe Syndrome

Broadcasting Support Services

Bronchiectasis

Bronchitis, Chronic

Brothers and Sisters of People with Learning Difficulty

Brutons Disease

Bulbar Palsy/Pseudobulbar Palsy

Bulimia

Bullous Ichthyosis Erythroderma

Bully Alert UK

Bullying

Burn Association, British

CAH Group

Calve-Perthes Disease

Cancer

Cancer and Leukaemia in Childhood (CLIC)

Cancer Care for Children, Sargent

Cancer Care Society

Cancer Help Centre, Bristol

Cancer Information Centre, Tenovus

Cancer Society, Irish

Cancer, New Approaches to

CancerBACUP

Cancerlink

Candida Society, National

Candidiasis, Chronic Mucocutaneous

Cardiomyopathy Association

Care and Befriending Schemes

Careline

Carers UK

Carers, Princess Royal Trust for

Caring Matters Now

Carpenter Syndrome

Catalepsy/Cataplexy

Cataract in Children

Catholic Child Welfare Council

Catholic Children's Crusade of Rescue

CDLS Foundation UK

Central Hypoventilation Syndrome, Congenital

Central Nervous System, Tumours of

Cerebellar Ataxia/Atrophy/Degeneration

Cerebra (Foundation for the Brain Injured Child)

Cerebral Giantism

Cerebral Palsy

Cerebroside Lipidosis

CGD Research Trust & Support Group

Challenging Behaviour Foundation

Changing Faces

Charcot-Marie-Tooth Disease

CHARGE Association Family Support Group

Chediak-Higashi Syndrome

Chemical Allergy

Chemicals, Environmental

Cheshire Foundation

Chest, Heart & Stroke Association

Chest, Heart & Stroke, Scotland

Child Abuse

Child Accident Prevention Trust (CAPT)

Child Bereavement Trust

Child Brain Injury Trust (CBIT), The

Child Death

Child Death Helpline Department

Child Development and Rehabilitation Centres

Child Growth Foundation

Child Protection Helpline

Child Psychotherapy Trust

Childbirth Trust, National

Childcare/Nannies for Special Needs

Childhood Nephrotic Support

Childline

Children in Hospital

Children in Scotland

Children's Bureau, National

Children's Hospices

Children's Society, The

Chiropractic Patients Association

Cholesterol, Inherited High Levels

Chondroectodermal Dysplasia

Chorea, Chronic Degenerative

Christian Fellowship

Christian Lewis Children's Cancer Care

Christmas Disease

Chromosome 13 Trisomy (Patau Syndrome)

Chromosome 18 Trisomy (Edwards Syndrome)

Chromosome 21 Trisomy

Chromosome 22q 11 Group

Chromosome Disorders, Rare

Chromosome Five, Short Arm Deletion

Chromosome Four, Short Arm Deletion

Chronic and Long-Term Medical Conditions

Chronic Fatigue Syndrome

Chronic Granulomatous Disease

Chronic Mucocutaneous Candidiasis

Chronic Obstructive Airways Disease

Church Action On Disability (CHAD)

Churg-Strauss Syndrome

Ciliary Dyskinesia, Primary

CJD Support Group

CLAPA (Cleft Lip and Palate Association)

Cleft Lip/Palate

Climb

Cloacal Exstrophy

Cloverleaf Syndrome

Club Foot

‘Clumsy Child' Syndrome

CMD Support

CMT United Kingdom

CMV (Congenital) Association

COA Support Group

Coeliac UK

Coffin-Lowry Syndrome Support Group

Coffin-Siris Support Network

Cogan Syndrome

Cohen Syndrome Support Group

Colitis and Crohn's Disease, National Association for

College of Health Waiting List Helpline

Coloboma Contact Group

Colostomy Association, British

Colostomy in Children

Combined Immune Deficiency Disease

Communication Skills, Absence or Loss of

Community Hygiene Concern

Community Service Volunteers

Compassionate Friends, The

Compulsion Disorders

Conductive Education

Cone Dysfunction

Congenital CMV Association

Congenital Hypotonia Support Group

Congenital Neutropenia

Constipation, Chronic

Contact a Family

Contact a Family, Northern Ireland

Contact a Family, Scotland

Contact a Family, Wales

Cooley's Anaemia

Coprolalia/Generalised Tic Syndrome

Cori Syndrome

Cornelia De Lange Syndrome

Corpal

Costello Syndrome Support Group, International

Cot Death

Cot Death Society

Cot Death Trust, The Scottish

Counselling & Psychotherapy, British Association for

Cranial Osteopathic Association

Craniofacial Abnormalities

Craniosacral Therapists, International Register of

Creutzfeldt-Jacob Disease

Cri du Chat Syndrome Support Group

Crime: Accusation of People with Learning Disability

Crohn's in Childhood Research Association (CICRA)

Crossroads Caring for Carers

Crossroads Scotland

Crouzon Syndrome

Cruse Bereavement Care

Cry-Sis

Cued Speech, National Centre for

Cushing Care

Cushing's Treatment and Help, Association for

Cutis Hyperelasticum

CVS Association

Cyclical Neutropenia

Cyclical Vomiting Syndrome

Cystic Encephalomalacia

Cystic Fibrosis Trust

Cystic Hygroma Support Group

Cystitis & Candida Information Service

Cytomegalovirus, Congenital (CMV)

DAF Syndrome

Dancing Eye Syndrome Support Trust

Dandy-Walker Network

Daycare Trust

De Lange Syndrome

Deaf Association, The British

Deaf Children's Society, National (NDCS)

Deaf People, Royal National Institute for the

Deaf, Wales Council for the

Deaf/Blind and Rubella Association

Deafblind UK

Deafblind Scotland

Deafened People, National Association of (NADP)

Deafness

deafPLUS

Debra

Delayed Myelin Matters

Deletion of Chromosomes

Dental Amalgams

Dental Anxiety and Phobia Association

Dental Care in Profound and Multiple Disability

Dental Health Foundation, British

Dentistry for the Handicapped, British Society of

Depression in People with Learning Disability

Dermatitis Herpetiformis

Dermatological Disorders

Dermatomyositis

Di George Syndrome

Diabetes Foundation, Juvenile

Diabetes Insipidus

Diabetes UK

Diabetes, Insulin-Dependent

Dial UK (Disablement Information & Advice Line)

Diamond-Blackfan Anaemia Support Group

Diaphragmatic Hernia Support Network

Diaphyseal Aclasis

Diarrhoea, Chronic

Diastrophic Dysplasia/Dwarfism

Different Strokes

Digestive Disorders Foundation

Disabilities, Parents with

Disability and Rehabilitation, Royal Association for

Disability Action (N. Ireland)

Disability Advice and Welfare Network

Disability Federation of Ireland

Disability Wales

Disability, Pregnancy & Parenthood International (DPPI)

Disabled Children, Council for

Disabled Parents Network

Disabled Persons Transport Advisory Committee (DPTAC)

Disablement Information & Advice Line

Disfigurement Guidance Centre (DGC)

Disfigurement, Facial

Dislocation of Hip, Congenital

Downs Heart Group

Downs Syndrome Association

Downs Syndrome Scotland

Dreams Come True Charity

Drug Education

Dsfa

Duchenne Family Support Group

‘Dwarfism'

Dysautonomia Society of Great Britain

Dyskeratosis Congenita Society

Dyslexia Association, British

Dyslexia Centre, Helen Arkell

Dyslexia in Scotland

Dyslexia Institute

Dysmennorhoea

Dysphasic Adults, Action for

Dyspraxia Foundation

Dystonia Society, The & Young Dystonia

Dystonic Lipidosis, Juvenile

Dystrophic Epidermolysis Bullosa

Ear, Atresia of

Eating Disorders Association

Echo: Parent To Parent Befriending Service

E-Coli Infection

Ectodermal Dysplasia Society

Ectopia Vesicae

Eczema Society, National

Edwards Syndrome (Trisomy 18)

Ehlers-Danlos Syndrome Support Group

Elected Termination for Foetal Abnormality

Elective Mutism

Elimination of Leukaemia Fund (ELF)

Ellis-Van Creveld Foundation

EMG Syndrome

Emotional and Behavioural Difficulties, Association of Workers for Children with (AWCEBD)

Emphysema

Enable

Encephalitis Support Group

Encephalofacial Angiomatosis

Encephalomyelitis Myalgia

Encephalomyelitis, Acute Disseminated

Endochondromatosis

Enquire

Enteral Nutrition Therapy

Enuresis (Incontinence)

Environment-Related Allergy

Eosinophilic Granuloma

Epidermolysis Bullosa

Epilepsy Action (British Epilepsy Association)

Epilepsy Action Scotland

Epilepsy Bereaved

Epilepsy, David Lewis Centre for

Epilepsy, Generalised Flexion

Epilepsy, National Society for

Epiphyseal Dysplasia, Multiple (MED)

Epispadias

Erb's Palsy Support Group

Erythromelalgia

Exomphalos

Exomphalos/Macroglossia/Giantism Syndrome

Exploring Parenthood

Exstrophy of the Bladder

Eye Care for People with Learning Disabilities

Eye Conditions, Specific

Eyecare Trust, The

Fa Uk

Fabry's Disease Support Group

Face to Face

Facial Disfigurement

Facioauriculovertebral Syndrome

Facioscapulohumeral Muscular Dystrophy

Fainting Attacks, Chronic

Familial Dysautonomia

Familial Gout

Familial Haemorrhagic Telangiectasia

Familial Hypercholesterolaemia

Familial Hyperlipidaemia

Familial Spastic Paraplegia

Families Need Fathers

Family Therapy, Institute of

Family Welfare Association

Fanconi Anaemia

Fathering

Fatigue Syndrome

Feminising Testes Syndrome

Fibrosing Alveolitis

Flexion Epilepsy, Generalised

Floating Harbor Syndrome Contact Group

Foetal Abnormality, Elected Termination for

Foetal Alcohol Syndrome Trust

Foetal Anti-Convulsant Syndrome Association, National

Folks

Foresight

Fostering Network, The

Foundation for the Study of Infant Deaths

Fragile-X Society, The

Franceschetti-Klein Syndrome

Friedrich's Ataxia

FSH Muscular Dystrophy Support Group

FSP Group

Fucosidosis

Galactosaemia Support Group

Gastro-Oesophageal Reflux

Gastroschisis

Gastrostomy Tube Feeding

Gaucher's Association

Geeps

Generalised Tic Syndrome

Genetic Interest Group

German Measles in Pregnancy, Damage due to

GHD Support Group

Giant Cell Arteritis

Giantism, Exomphalos & Macroglossia Syndrome

Gilbert-Dreyfus Syndrome

Gilles De La Tourette Syndrome

Gingerbread

Glanzmanns Thromboasthenia Contact Group

Glaucoma Association, International

Glomerulonephritis

Gluten Sensitivity

Glycogen Storage Diseases, Association for (UK)

Goldberg-Maxwell Syndrome

Goldenhar Syndrome Family Support Group

Gorlin Syndrome Support Group

Gout, Familial/Juvenile

Grandparents' Association

Granulomatous Diseases, Chronic

Greig Syndrome

Group B Strep Support

Growth Accelerated

Growth Hormone Deficiency

Growth, Restricted/Delayed

Guillain-Barre Syndrome Support Group

Gut Motility Disorders Support Network

Haemochromatosis Society

Haemolytic Uremia

Haemophagocytic Lymphohistiocytosis

Haemophilia Society, The

Haemorrhagic Telangiectasia, Hereditary

Hair Loss

Hairline International

Half PINNT

Hand & Arm Deficencies

Hand-Schuller-Christian Syndrome

Harlequin Ichthyosis

Hayfever

Head Injury in Children

Head Injury Re-Education (HIRE)

Head Injury Rehabilitation Service

Head Injury Trust for Scotland (HITS)

Headlice

Headlines (Craniofacial Support Group)

Headway (National Head Injuries Association)

Health Education Authority

Health Information Service, National

Health Protection Libraries (Scotland)

Hearing Concern

Hearing Impairment in Young Adults

Hearing Voices Network, National

Heart Disease

Heart Disease, Familial

Heart Disorders

Heart Disorders Plus Downs Syndrome

Heart Disorders, Association for Children with (Scotland)

Heart Federation, Children's

Heart Transplant

Heart UK

Heartbeat (Northern Ireland)

Help for Health Trust

Hemifacial Microsomia

HemiHelp

Hemimegalencephaly

Hemiplegia

Hemiplegia, Alternating

Henoch-Schonlein Purpura

Hereditary Multiple Exostoses Support Group

Herpes Viruses Association

Hips, Congenital Dislocated

Hirschsprung Disease

Histiocytosis Family Support Association UK

HITS (UK) Family Support Network

Hiv & Aids

HME Contact Group

Hodgkins Disease

Hollow Visceral Myopathy

Holt-Oram Syndrome Support Group

Home Start UK

Hormone Deficiency, Growth/Pituitary

Horner Syndrome with Paralysis of the Arm

Hospices

Hospital Waiting List Helpline

Hunter Syndrome

Huntington's Disease Association

Huntington's Disease Association, Northern Ireland

Hurler Syndrome

HUSH (UK E-Coli Support Group)

Hydranencephaly Support Group, International

Hydrocephalus Network

Hyper Ige Syndrome

Hyperactive Children's Support Group (HCSG)

Hyperactivity/Attention Deficit Disorder

Hypercalcaemia, Infantile

Hypercholesterolaemia, Familial

Hyperekplexia (Hyperexplexia) Support Group

Hyperlipidaemia, Familial

Hypermobility Syndrome Association

Hyperpyrexia, Malignant

Hyperreflexia