ABSTRACT

This chapter aims to report on how ten people with a hereditary condition, diastrophic dysplacia, lead their daily lives. It presents the views they hold on being and becoming a partner or a parent and discusses the variety of views these people hold on prenatal screening. The possibility of being or becoming a disabled parent is an important issue when viewed through the lens of prenatal screening. These interviews show the ambivalence with which disabled persons regard prenatal diagnosis. The chapter also discusses studies of diastrophic dysplacia that have been made in the medical context. It shows that indeed these ten respondents hold a wide variety of views on issues, such as prenatal screening. The interviews revealed an interesting story of the general change in societal attitudes towards persons with diastrophia when they became a parent or took a partner.