ABSTRACT

This chapter shows that enabling individuals to find their creative voice gives them the confidence to get more involved in the delivery of care. It explores how support is critical in bringing groups together to build a collective voice that might deliver change. Finding our voice can be an end in itself. However, in reality, most people seek user involvement because they believe some useful change will transpire. It also explores support groups can nurture a collective voice without the idea of group action and political change being part of the agenda. The digital revolution has paralleled the healthcare revolution and influenced an agenda for greater patient access to the technologies of media production and increased participation from the service user. Palliative care has not ignored the digital revolution. Many day centres have computers and broadband access. If digital technology is to play an active role in user participation in services, the latter must meet a number of prior requirements.