ABSTRACT

Although age is the main risk factor for dementia, around 5% of people diagnosed are under the age of 65. This is commonly referred to as Young or Early Onset Dementia. People with young onset dementia can often have a different experience of dementia, compared to those diagnosed in later life. This is because a younger person with dementia is more likely to be in employment, have outstanding financial commitments and dependent children still in education. A diagnosis of dementia at an earlier age can disrupt the life course and can result in a loss of employment, financial difficulties and relationship problems. A challenge in the care of people with younger onset dementia is the lack of age-appropriate services and activities, where younger people are often supported in older age services. However, with appropriate support younger people with dementia can continue to live well. Continued employment post diagnosis is possible with support and increased use of technology is allowing many younger people with dementia to develop their own support networks. There are many examples of good practice that show how services can be adapted and developed for younger people with dementia and their families to ensure appropriate and meaningful support.