ABSTRACT

The workshop’s purpose was to initiate a dialogue concerning “good practice” issues in research and collaboration with mutual aid groups with the long range goal of developing ethical guidelines for professionals and for mutual aid organizations. Participants represented mutual aid groups, professionals and self-help clearinghouses. Three of the topic areas addressed during the workshop were analysed from the perspectives of the professionals: 304respecting the autonomy, integrity and unique culture of each group, ensuring that guidelines for confidentiality are adhered to, and respecting experiential knowledge. From the perspectives of mutual aid organizations, preserving autonomy and self-determination, incorporating new information and maintaining confidentiality were also discussed.