ABSTRACT
Trust between researchers and participants is paramount in any research project. A primary element of that trust is that agreed-upon measures relating to anonymity, privacy, and confidentiality be respected and maintained. This chapter will discuss anonymity, privacy, and confidentiality in the specific context of participatory research (PR), examining why traditional ethical models for thinking about these aspects of human subjects research do not “fit” easily with PR, as well as the particular challenges that participatory researchers face in determining the extent to which anonymity, privacy, and confidentiality are desirable and even possible in light of the very nature of PR.
