chapter  17
11 Pages

Examining the notion of informed consent and lessons learned for increasing inclusion among marginalised research groups

This chapter examines some of the barriers to obtaining informed consent from those who are deemed vulnerable, disadvantaged, marginalised and underrepresented in research to participate in research studies. First, the chapter examines the underlying principles of informed consent, before examining the challenges that formalised and regulated informed consent procedures present for context-dependent data collection processes and the differing needs of potential research participants. Next, the chapter examines the notions of trust and researcher responsibility, and their significance for negotiating and maintaining a mutually accepted form of consent that can enhance, rather than diminish, participant autonomy.