chapter  3
19 Pages

The voice of silence: UK patients’ silent resistance to the assisted reproduction regulations


Since the 1990s, one of the most controversial changes to the UK’s Human Fertilisation and Embryology Act (HFE Act) concerned the information that is kept about the egg, sperm (gametes) and embryo donors in donor registers. This information is held by the Human Fertilisation and Embryology Authority (HFEA), which is a quasi-autonomous non-governmental organisation (quango) set by the HFE Act in 1990 to license and regulate clinics that carry out in vitro fertilisation (IVF), other assisted conception techniques using human sperm, eggs and embryos, and embryo research.