chapter  15
12 Pages

Rights, risks and responsibilities

New genetics and disabled people
ByTom Shakespeare

This chapter explores personal, political and sociological dimensions of biology and disability, focusing on genetics in particular. In my work with Newcastle’s Policy, Ethics and Life Sciences Research Institute, I spend much of my time talking to schools and community groups about the Human Genome Project, and the social and ethical issues it raises. On these occasions I speak as a sociologist, and a science communicator, and a bioethicist, but also as a member of the disability movement, and as someone with a genetic condition. These different identities and perspectives will shape this chapter.