ABSTRACT
This presents an overview of the research on children's and families' experiences relevant to understanding the importance of family supports and services as families learn about their child's disability, access intervention services and supports and as their children transition to adulthood. Approximately 1 in 6 children in the US has a developmental disability, making the likelihood that nearly every family has or knows of a child in their extended family with a developmental disability. For families of children with autism spectrum disorder (ASD), the wide variability in developmental profiles and co-morbid conditions, coupled with substantial media attention and the evolving nature of the diagnosis and treatment options, add to the complexity of each family's experience. Parents of children with ASD likely have more stress, and their responses to stress may impact their children's outcomes. Thus, professionals and programs should incorporate supports matched to the unique and changing needs and interests of the families.
