ABSTRACT
Genetic information is widely regarded as a particularly sensitive form of
personal information. The presence of a genetic mutation within a family is
significant for family members as well as the individual. Those affected may
suffer anxiety, fear, depression, guilt, ‘‘the stress of being the bearer of bad
news in the family [and] disruption to family relationships.’’1 Genetic
information may influence life and health insurance, employment, loans,
marriageability, reproductive choices, adoption, and entitlement to govern-
ment services and law enforcement. Genetic information may inadvertently reveal details that were not sought or anticipated, such as non-paternity or
consanguinity. It is conceivable that information may be disclosed to the
police or the media.
