ABSTRACT

This chapter focuses on the capacity of the issue of genetic discrimination to summon as a 'we', the kind of issues that a group of citizens can recognize as shared and thus consider worthy of collective concern and action. It builds on work on the social mobilization of disease following a pragmatist approach of an issue-based politics of solidarity to unravel these dynamics of the problematization of genetic discrimination. It argues that the politics of genetic solidarity has been a productive move for the insurance industry in safeguarding the insurance principles of actuarial risk discrimination. The chapter gives a sobering account of the state of the art of 'inhabiting postgenomic worlds' in documenting the problematization of genes in our 'modern' Western social policy worlds and institutions. To understand the origins and rise of genetic non-discrimination regulations, it is necessary to get more insight into the drivers and mechanisms that fostered the rise of these state regulations.