ABSTRACT
Sometimes emergence of new technologies presents us with unexpected problems. An interesting example is the finding of unsought information in newborn screening. The accidental' detection of diseases raises question of what to do with this information. This chapter focuses on question of to what extent parents have a right to choose what information they receive. It argues that a right to autonomous choice provides no basis for such a right. Newborn screening performed in a many countries all over the world. Whereas at first screening was mostly performed solely on Phenylketonuria (PKU), new technologies have made it possible to screen for a large variety of diseases. The technological developments that caused a minor revolution in the field of newborn screening have been introduction of tandem mass spectrometry (MS). MS makes it possible to screen for several dozens of amino, organic and fatty acid disorders, in a relatively cheap and efficient manner. One of the diseases that may screen for is MCADD.
