ABSTRACT

This chapter explores the experience of loss from author's perspective as a mother and a midwife. It examines the definitions and prevalence of loss as well as the research on optimal care. Despite the lack of randomised controlled trials, which one could argue would be unethical in the first place, the authors identified few themes that should be considered when providing care to families following the death of a baby: a deep respect for the individuality and diversity of grief, respect for the deceased child, and recognition of the healing power and resilience of the human spirit. Care was defined as optimal when it included sensitive supportive care, flexible care, and response to individual needs, facilitating understanding, and creating special memories, listening to and sharing grief, making a positive difference and creating a supportive environment. The support from and the emotional attitudes of caregivers was seen as very important in helping parents move through their grief.