Patient-reported measures as a justice project through involvement of service-user researchers

Research groups in London and Sydney are developing new patient-reported measures of the treatment experiences and outcomes of people who use alcohol and other drugs. We discuss why service users should be part of the research process when developing new patient-reported measures, what this can deliver, what tensions might exist and some of the lessons we have learned. In so doing, we demonstrate how the development of patient-reported measures, and research more broadly, is stronger when conducted in partnership with service users as a justice-based project.