ABSTRACT

This chapter summarizes prior literature on Asian Indian and South Asian adults residing in the United States (US) and their experience with dementia. The key findings were that older South Asian Americans are a diverse group in terms of immigration status, language, and religion. Prevalence of dementia as measured in India varies greatly by region and by state, with some regions having up to double the prevalence of other states. In terms of incidence, data are limited both in South Asia and in the US for this population. A recent study of South Asians residing in California suggests comparable incidence to non-Latino White adults. Cardiovascular risk factors, diet, and exercise are often poor for South Asian adults and may contribute to increased risk. Knowledge of dementia is low for this cultural group. Cultural explanations for the disease process may limit or delay care-seeking. In summary, South Asians may have high rates of dementia, may lack knowledge about the disease process, and may have barriers to seeking care. This is a call to action to fill the research, educational, and service gaps identified for older South Asian adults with dementia and their families.