ABSTRACT

Several of the key methods for understanding sudden unexpected death in epilepsy (SUDEP) are the creation of large registries, development of cohorts, and the use of retrospective studies. A cohort of epilepsy patients in South Carolina was established over a 30-year period. This dataset is unique in that it includes over 3000 cases, both alive and deceased, some of whom have died from SUDEP. The inclusion of living patients as a comparison group is highly desirable and will be used in the forthcoming SUDEP cluster risk identification study.