The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy and health economics. The importance of "individual" quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables.
The editors of this book believe that the primary focus of quality of life is and must continue to be the individual, who alone can define it and assess its changing personal significance. The challenge of presenting this belief

part |71 pages

Conceptual and Methodological Principles

chapter |5 pages


The Individual Perspective
ByC. R. B. Joyce, Ciaran A. O’Boyle, Hannah M. McGee

chapter |19 pages

Measuring the Quality of Life

Why, How and What? *
ByMatti Häyry

chapter |7 pages

Individualising Assessment in Intervention Studies

N-of-1 Trials *
ByStephen Senn

part |100 pages

Specific Approaches to Individual Quality of Life Assessment

chapter |12 pages

Interpretation of data from Health Status Measures

What Do the Numbers Mean?
ByCrispin Jenkinson, Sue Ziebland

chapter |17 pages

Individualising Questionnaires

ByYves Lacasse, Eric Wong, Gordon H. Guyatt

chapter |14 pages

The Patient Generated Index

ByAndrew M. Garratt, Danny A. Ruta

chapter |15 pages

The Schedule for the Evaluation of Individual Quality of Life

ByAnne Hickey, Ciaran A. O’Boyle, Hannah M. McGee, C. R. B. Joyce

chapter |16 pages

Methods for Assessing Relative Importance in Preference Based Outcome Measures *

ByRobert M. Kaplan, David Feeny, Dennis A. Revicki

part |39 pages

Applications of Individual Quality of Life Assessment

chapter |15 pages

Individual Quality of Life In Palliative Care

ByDympna Waldron, Ciaran A. O’Boyle

part |12 pages

Future Directions

chapter |10 pages

Individual Quality of Life

Review and Outlook
ByC. R. B. Joyce, Hannah M. McGee, Ciaran A. O’Boyle