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      Book

      Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome
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      Book

      Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome

      DOI link for Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome

      Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome book

      Awake Behind Closed Eyes

      Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome

      DOI link for Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome

      Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome book

      Awake Behind Closed Eyes
      ByAlex Jelly, Adel Helmy, Barbara A. Wilson
      Edition 1st Edition
      First Published 2019
      eBook Published 20 December 2019
      Pub. Location London
      Imprint Routledge
      DOI https://doi.org/10.4324/9780429022968
      Pages 174
      eBook ISBN 9780429022968
      Subjects Behavioral Sciences, Health and Social Care, Medicine, Dentistry, Nursing & Allied Health
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      Jelly, A., Helmy, A., & Wilson, B.A. (2019). Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome: Awake Behind Closed Eyes (1st ed.). Routledge. https://doi.org/10.4324/9780429022968

      ABSTRACT

      This book offers a personal insight into the experience of Alex Jelly, a professional fundraiser who developed a rare brain tumour, a papillary meningioma, which was successfully removed. She was left with Supplementary Motor Area Syndrome and associated problems including motor and speech impairments and a temporary psychosis. Discussing Alex’s struggles and triumphs throughout her rehabilitation, this book offers an honest account of her journey from diagnosis to recovery.

      Part I introduces Alex’s early life and employment, symptom onset and diagnosis, treatment and rehabilitation. Part II presents her neurosurgeon, Adel Helmy, and a clinical neuropsychologist, Barbara A. Wilson. Adel provides a medical context by explaining Alex’s successful surgery and her post-operative experience. Finally, Barbara concludes with a comprehensive view of Alex’s recovery and gives a voice to the therapists and psychologists who worked with Alex throughout her in and outpatient rehabilitation journey.

      This book provides support, understanding and hope for patients who have suffered a brain tumour, and their families. It is valuable reading for any professional involved in neurorehabilitation, studemts of clinical neuropsychology and those touched by brain injury.

      TABLE OF CONTENTS

      part I|2 pages

      Alex’s story

      chapter 1|4 pages

      Life before

      ByAlex Jelly

      chapter 2|4 pages

      Symptoms and diagnosis

      The Lime in the Coconut
      ByAlex Jelly

      chapter 3|1 pages

      The op

      Happy Valentine’s Day
      ByAlex Jelly

      chapter 4|5 pages

      Early visits

      ByAlex Jelly

      chapter 5|34 pages

      Psychosis and stories

      Insights and butterflies
      ByAlex Jelly

      chapter 6|3 pages

      Cancer

      ByAlex Jelly

      chapter 7|30 pages

      Rehabilitation and recovery

      ByAlex Jelly

      chapter 8|23 pages

      Naturopathy and strategies that have helped

      ByAlex Jelly

      chapter 9|2 pages

      Life today

      ByAlex Jelly

      part II|2 pages

      Background information from Adel Helmy and Barbara A. Wilson

      chapter 10|6 pages

      Meningioma and the brain

      ByAdel Helmy

      chapter 11|4 pages

      Supplementary Motor Area Syndrome

      ByAdel Helmy

      chapter 12|18 pages

      Reports from staff and Alex’s former partner

      ByBarbara A. Wilson

      chapter 13|10 pages

      Alex at the Oliver Zangwill Centre

      ByBarbara A. Wilson

      chapter 14|3 pages

      Summary and conclusions

      ByBarbara A. Wilson
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