ABSTRACT

Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems.

The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries.

Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families.

part Part I|80 pages

Framing the Ageing with Disability Experience

chapter 21|11 pages

Understanding Ageing with Disability

ByMichelle Putnam, Caitlin E. Coyle, Lydia P. Ogden, Christine Bigby

chapter 2|9 pages

Rethinking the Concept of Successful Ageing

A Disability Studies Approach
ByTove Harnett, Annika Taghizadeh Larsson, Håkan Jönson

chapter 3|9 pages

Ageing with Lifelong Disability

Individual Meanings and Experiences Over Time
ByLieke van Heumen

chapter 5|13 pages

Social and Environmental Determinants of the Health of People with Disabilities

ByEric Emerson, Zoe Aitken, Hannah Badland, Nicola Fortune, Celia Green, Jerome N. Rachele

chapter 7|12 pages

Segmenting Ageing and Disability Policy

Ethical Concerns
ByJerome Bickenbach

part Part II|78 pages

Diverse Experiences of Ageing with Disability

chapter 828|14 pages

Understanding the Experience of Growing Older with Cerebral Palsy

ByLaura R. Moll, Cheryl A. Cott

chapter 9|11 pages

Ageing with Deafblindness

ByPeter Simcock, Jill Manthorpe

chapter 11|15 pages

Ageing and Brain Injury Long-Term Outcomes in Adults

ByAngela Colantonio, Melissa Biscardi

chapter 12|10 pages

Ageing with Multiple Sclerosis

ByMarcia Finlayson, Michelle Ploughman, Julie Pétrin, Roshanth Rajachandrakumar

chapter 13|11 pages

Ageing when Being Autistic

ByHilde M. Geurts, Rebecca Charlton, Lauren Bishop

part Part III|58 pages

Forwarding Social Inclusion

chapter 16014|8 pages

Community Participation and Engagement for Persons Ageing with Physical Disability

ByRachel Heeb, Courtney Weber, Jessica Dashner, Kerri Morgan

chapter 15|17 pages

Design for One is Design for All

The Past, Present, and Future of Universal Design as a Strategy for Ageing-in-Place with Disability
ByJon A. Sanford, Elena T. Remillard

chapter 16|10 pages

Support for Decision-Making as People Age with a Cognitive Impairment

ByTerry Carney, Shih-Ning Then

chapter 17|9 pages

Internalised Ageism and the User Gaze in Eldercare

Identifying New Horizons of Possibilities Through the Use of a Disability Lens
ByHåkan Jönson, Annika Taghizadeh Larsson, Tove Harnett

chapter 18|12 pages

Creating Age and Disability Friendly Communities to Support Healthy and Meaningful Ageing

ByFriedrich Dieckmann, Christiane Rohleder

part Part IV|104 pages

Intellectual Disability as a Case Example

chapter 21819|10 pages

The Emergence of Ageing with Long-Term Disability Populations

ByPhilip McCallion, Lisa Ferretti, Mary McCarron

chapter 20|11 pages

Health and Wellness Among Persons Ageing with Intellectual Disability

ByDarren McCausland, Philip McCallion, Mary McCarron

chapter 21|14 pages

Retirement for People with Intellectual Disability

Policy, Pitfalls, and Promising Practices
ByChristine Bigby

chapter 22|8 pages

Family Caregiving for Adults Ageing with Intellectual and Developmental Disabilities

ByTamar Heller, Sumithra Murthy, Catherine Keiling Arnold

chapter 23|11 pages

Ageing with Intellectual Disability in Sweden

Participation and Self Determination
ByMia Jormfeldt, Magnus Tideman

chapter 24|14 pages

Towards Untangling the Ageing Riddle in People with Intellectual Disabilities

An Overview of Research on Frailty and Its Consequences
ByJosje D. Schoufour, Dederieke Maes-Festen, Alyt Oppewal, Heleen M. Evenhuis

chapter 25|13 pages

How to Avoid Early Frailty in People with Intellectual Disabilities?

ByHeleen M. Evenhuis, Josje D. Schoufour, Alyt Oppewal, Dederieke Maes-Festen

chapter 26|10 pages

Dementia Care for Persons Ageing with Intellectual Disability

Developing Non-Pharmacological Strategies for Support
ByKaren Watchman, Kate Mattheys

chapter 27|11 pages

End-of-Life Care for Adults with Intellectual Disabilities

ByTeresa Moro, Jacqueline McGinley

part Part V|78 pages

Policies to Support Persons Ageing with Disability

chapter 32228|14 pages

Responding to Changing Workforce Realities

One Profession's Experience
ByFintan Sheerin, Philip McCallion, Mary McCarron

chapter 29|13 pages

Ageing in Place in Group Homes

An Australian Context
ByTal Araten-Bergman, Christine Bigby

chapter 30|11 pages

Support, Service Policies, and Programs for Persons Ageing with Disabilities in Korea

ByKyung Mee Kim, Seung Hyun Roh

chapter 31|11 pages

Trends in Integrating Long-Term Services and Supports in the United States

ByMichelle Putnam, Caitlin E. Coyle

chapter 32|12 pages

Access to Assistive Technology in Canada

ByRosalie Wang, Michael Wilson

chapter 33|8 pages

Ageing with Disability

Using Financial Mechanisms to Facilitate Intersectoral Collaboration
ByDavid McDaid, A-La Park

chapter 34|7 pages

Enabling a Good Old Age for People Ageing with Disability

Reflections on Progress
ByChristine Bigby, Michelle Putnam