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      Book

      The Data Protection Directive and Medical Research Across Europe
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      Book

      The Data Protection Directive and Medical Research Across Europe

      DOI link for The Data Protection Directive and Medical Research Across Europe

      The Data Protection Directive and Medical Research Across Europe book

      The Data Protection Directive and Medical Research Across Europe

      DOI link for The Data Protection Directive and Medical Research Across Europe

      The Data Protection Directive and Medical Research Across Europe book

      ByD. Beyleveld, D. Townend, S. Rouillé-Mirza, J. Wright
      Edition 1st Edition
      First Published 2004
      eBook Published 31 December 2016
      Pub. Location London
      Imprint Routledge
      DOI https://doi.org/10.4324/9781315240350
      Pages 264
      eBook ISBN 9781315240350
      Subjects Health and Social Care, Law
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      Beyleveld, D., Townend, D., Rouillé-Mirza, S., & Wright, J. (2004). The Data Protection Directive and Medical Research Across Europe (1st ed.). Routledge. https://doi.org/10.4324/9781315240350

      ABSTRACT

      The Data Protection and Medical Research in Europe: PRIVIREAL series focuses on the 'Privacy in Research Ethics and Law' EC-funded project examining the implementation of Directive 95/46/EC on data protection in relation to medical research and the role of ethics committees in European countries. The series consists of five separate volumes following the complete development of the PRIVIREAL project. This volume relates to the first stage of the project regarding the implementation of the Data Protection Directive, in particular in the area of medical research. It contains an introduction and overview of this topic, keynote papers addressing specific questions on the subject, and a report on both the general implementation of the Directive and the implementation in relation to medical research in 26 European countries. The book will be invaluable for those people with an interest in data protection, medical research and their implications for each other. It lays open the actual situation across Europe, including both New Member States and Newly Associated Member States.

      TABLE OF CONTENTS

      part I|112 pages

      Introduction and Keynote Papers

      chapter 1|2 pages

      Introduction

      ByDeryck Beyleveld, Ségolène Rouillé-Mirza, David Townend and Jessica Wright

      chapter 2|18 pages

      An Overview of Directive 95/46/EC in Relation to Medical Research

      ByDeryck Beyleveld

      chapter 3|10 pages

      The Concept of Privacy

      An Analysis of the EU Directive on the Protection of Personal Data
      ByMette Hartlev

      chapter 4|18 pages

      Anonymization and Pseudonymization

      The Legal Framework at a European Level
      ByCarlos María Romeo Casabona

      chapter 5|18 pages

      The Scope of Exemptions for Medical Research

      ByHerman Nys

      chapter 6|20 pages

      The Duty to Provide Information to the Data Subject: Articles 10 and 11 of Directive 95/46/EC

      ByDeryck Beyleveld

      chapter 7|14 pages

      Overriding Data Subjects’ Rights in the Public Interest

      ByDavid Townend

      chapter 8|10 pages

      Genetic Information and the Data Protection Directive of the European Union

      ByLasse A. Lehtonen

      part II|118 pages

      Report Framework and Comparative Studies

      chapter 9|10 pages

      EU, Norway and NAS Law Report Framework

      ByDeryck Beyleveld, David Townend

      chapter 10|64 pages

      Comparative Study on the Implementation and Effect of Directive 95/46/EC on Data Protection 1 in Europe

      General Standards
      BySégolène Rouillé-Mirza, Jessica Wright

      chapter 11|42 pages

      Comparative Study on the Implementation and Effect of Directive 95/46/EC on Data Protection in Europe

      Medical Research
      BySégolène Rouillé-Mirza, Jessica Wright
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