The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research.

Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary ‘bioeconomies’; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs – and is shaped by – developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research.

Chapter 13 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. https://www.routledgehandbooks.com/doi/10.4324/9781315451695-13

Chapter 28 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. https://www.routledgehandbooks.com/doi/10.4324/9781315451695-28


chapter 1|8 pages

Introduction to Handbook of Genomics, Health and Society

BySahra Gibbon, Barbara Prainsack, Stephen Hilgartner, Janelle Lamoreaux

part I|46 pages

Genomics and DNA-based technologies in the clinic and beyond

chapter 2|5 pages


BySabina Leonelli

chapter 3|9 pages

Biomedicalization in the Postgenomic Age

ByCatherine Bliss

chapter 4|8 pages

Genomics and big data in biomedicine

ByNiccolò Tempini, Sabina Leonelli

chapter 5|7 pages

Mainstreaming genomics and personal genetic testing

BySusan E. Kelly, Sally Wyatt, Anna Harris

part II|62 pages

Genomic technologies in the bioeconomy

chapter 8|7 pages


ByClaire Marris

chapter 9|8 pages

Limits to biocapital

ByMargaret Chiappetta, Kean Birch

chapter 10|8 pages

Gendered bioeconomies

ByJanelle Lamoreaux

chapter 11|11 pages

Genomic hope: promise in the bioeconomy

ByPaul Martin

chapter 12|9 pages

Neoliberalism on drugs

Genomics and the political economy of medicine
ByEdward Nik-Khah

chapter 13|9 pages

The value of the imagined biological in policy and society

Somaticizing and economizing British subject(ivitie)s
ByMartyn Pickersgill
Size: 0.13 MB

chapter 14|9 pages

Responsible research and innovation

ByUlrike Felt

part III|62 pages

Governance of medical genomics

chapter 15|5 pages


ByStephen Hilgartner

chapter 16|10 pages

The Human Genome Project and the legacy of its ethics programs

ByStephen Hilgartner

chapter 17|9 pages


ByShobita Parthasarathy

chapter 18|9 pages

Genomic platforms and clinical research

ByAlberto Cambrosio, Etienne Vignola-Gagné, Nicole Nelson, Peter Keating, Pascale Bourret

chapter 19|10 pages


ByStuart Hogarth

chapter 20|8 pages

Collection and protection of genomic data

ByEdward S. Dove

chapter 21|10 pages

In CRISPR’s world: genome editing and the politics of global science

ByJ. Benjamin Hurlbut

part IV|59 pages

Diversity and justice

chapter 22|6 pages


BySahra Gibbon, Barbara Prainsack

chapter 23|9 pages

Disability and the challenge of genomics

ByJackie Leach Scully

chapter 24|8 pages

Eugenics and enhancement in contemporary genomics

BySilvia Camporesi, Giulia Cavaliere

chapter 25|9 pages

Genomics and insurance

The lock-in effects of a politics of genetic solidarity
ByIne Van Hoyweghen

chapter 26|9 pages

Power asymmetries, participation, and the idea of personalised medicine

ByBarbara Prainsack

chapter 27|7 pages

Excavating difference: race in genomic medicine

BySandra Soo-Jin Lee

chapter 28|10 pages

Genomics in emerging and developing economies

ByDuana Fullwiley, Sahra Gibbon
Size: 0.14 MB

part V|70 pages

Crossing boundaries

chapter 29|7 pages


ByJanelle Lamoreaux

chapter 30|8 pages


ByMargaret Lock

chapter 31|9 pages

Environmental epigenetics and suicide risk at a molecular scale

ByStephanie Lloyd, Eugene Raikhel

chapter 32|10 pages

Stem cells: global cells, local cultures

ByJennifer Liu

chapter 33|10 pages

Co-producing animal models and genetic science

ByCarrie Friese

chapter 34|8 pages

Making microbiomes

ByAmber Benezra

chapter 35|9 pages

Behavior genetics: boundary crossings and epistemic cultures

ByNicole C. Nelson, Aaron Panofsky

chapter 36|8 pages

Synthetic biology

ByDeborah Scott, Dominic Berry, Jane Calvert