ABSTRACT
This Handbook presents established and innovative perspectives on involving older adults as co-creators in ageing research. It reorients research and policy toward more inclusive and adequate designs that capture the voices and needs of older adults.
The Handbook:
- introduces types of participatory approaches in ageing research;
- highlights key methodological aspects of these approaches;
- gives insights from projects across different cultural contexts and academic disciplines, showing ways in which older participants can be involved in co-designing different stages of the research cycle;
- examines key issues to consider when involving older participants at each step of the research process;
- includes the voices of older adults directly;
- draws out conclusions and points ways forward for future research.
This Handbook will be essential reading for researchers and students interested in the field of ageing and/ or participatory methods, as well as for those policy stakeholders in the fields of ageing and demographic change, social and public policy, or health and wellbeing who are interested in involving older adults in policy processes. It will be useful for third-sector advocacy organizations and international non-governmental and public agencies working either in citizen involvement/participation or the ageing sector.
TABLE OF CONTENTS
part 1|61 pages
Methodological aspects of participatory approaches in ageing research
chapter 2|14 pages
Role of reflexivity in challenging participation inequality in participatory approaches with Older Adults
chapter 3|14 pages
The willingness of older adults to engage in participatory research
part 2|45 pages
Designing research together with older adults
chapter 6|13 pages
Setting the research agenda together as a form of productive ageing. Rationale and exemplary cases
chapter 8|15 pages
Tensions in transformation
part 3|49 pages
Collecting data together with older adults
chapter 10|17 pages
Older individuals' active participation in data collection in diverse settings in South Africa
part 4|56 pages
Analysing and validating results together with older adults
chapter 12|10 pages
Experience of member check with older adults in non-participatory-research-culture
chapter 15|15 pages
Older adults in research
part 5|58 pages
Disseminating results together with older adults
chapter 16|17 pages
Promoting civic participation
chapter 17|14 pages
Making graphic magazines with people living with dementia
chapter 18|11 pages
The later life audio and radio co-operative
part 6|42 pages
Doing the whole research process together
chapter 20|11 pages
The Belgian ageing studies
chapter 22|15 pages
Patient partner engagement in dementia research during the COVID-19 pandemic and beyond
part 7|44 pages
Voices and experiences of older co-researchers
chapter 23|8 pages
Working together to research the everyday lives of people living with dementia and those supporting them
chapter 25|6 pages
Co-creating research
chapter 26|7 pages
Doing research together – insights from the intergenerational project “DigiGen” in Germany
chapter 27|8 pages
Co-creating research
part 8|67 pages
Future perspectives in the field of participatory approaches in ageing research