ABSTRACT
The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.
Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as:
- state-of-the-field analyses of modern medicine, bioethics, and disability theory
- health, disease, and the philosophy of medicine
- issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states
- enhancement and biomedical technology
- invisible disabilities, chronic pain, and chronic illness
- implicit bias and epistemic injustice in health care
- disability, quality of life, and well-being
- race, disability, and healthcare justice
- connections between disability theory and aging, trans, and fat studies
- prenatal testing, abortion, and reproductive justice.
The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.
TABLE OF CONTENTS
part I|30 pages
History, Medicine, and Disability
part II|31 pages
Bioethics
part III|21 pages
Philosophy of Medicine and Phenomenology
part IV|42 pages
Prenatal Testing and Abortion
chapter 10|13 pages
A Fatal Attraction to Normalizing
part V|45 pages
Disability, the Life Course, and Well-Being
part VI|51 pages
Issues at the Edge and End of Life
chapter 17|8 pages
Death, Pandemic, and Intersectionality
chapter 18|12 pages
Disorders of Consciousness, Disability Rights, and Triage During the Covid-19 Pandemic
chapter 20|9 pages
Between “Aid in Dying” and “Assisted Suicide”
part VII|37 pages
Disability, Difference, and Health Care
part VIII|42 pages
Intellectual and Mental Disabilities
chapter 27|10 pages
Research Ethics and Intellectual Disability
chapter 28|9 pages
Inconvenient Complications to Patient Choice and Psychiatric Detention
part IX|29 pages
Disability Bioethics
part X|47 pages
The Ends of Medicine