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Book

Ethical Issues of Human Genetic Databases

Book

Ethical Issues of Human Genetic Databases

DOI link for Ethical Issues of Human Genetic Databases

Ethical Issues of Human Genetic Databases book

A Challenge to Classical Health Research Ethics?

Ethical Issues of Human Genetic Databases

DOI link for Ethical Issues of Human Genetic Databases

Ethical Issues of Human Genetic Databases book

A Challenge to Classical Health Research Ethics?
ByBernice Elger
Edition 1st Edition
First Published 2010
eBook Published 18 May 2016
Pub. Location London
Imprint Routledge
DOI https://doi.org/10.4324/9781315580296
Pages 332
eBook ISBN 9781315580296
Subjects Health and Social Care, Humanities, Law
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Elger, B. (2010). Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics? (1st ed.). Routledge. https://doi.org/10.4324/9781315580296

ABSTRACT

Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.

TABLE OF CONTENTS

chapter 1|10 pages

Introduction

chapter 2|42 pages

Selected Existing Genetic Databases: Distinctive Features, Ethical Problems and the Public Debate

chapter 3|88 pages

The Ethical Debate: Principles, Values and Interests – The Ethical Foundations of Guidelines

chapter 4|110 pages

Selected Issues of Consensus and of Controversy

chapter 5|6 pages

Ethical Issues of Human Genetic Databases and the Future

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