This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it.

The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice.

The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development.

The Open Access version of this book, available at https://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.

chapter |12 pages


Why critical dementia studies and why now?
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part I|42 pages

Reclaiming and recasting

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chapter 2|5 pages

Small quantities at a time

On music, poetry and social media
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chapter 5|18 pages

Recognising Birkby

Living and caring with dementia
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part II|61 pages


chapter 6|15 pages

‘Lost in time like tears in rain’

Critical perspectives on personhood and dementia
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chapter 7|11 pages

Multi-species dementia studies

How moving beyond human exceptionalism can advance dementia's more critical turn
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chapter 8|17 pages

Reframing ‘ethnicity’ in dementia research

Reflections on current whiteness of research and the need for an anti-racist approach
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chapter 9|16 pages

Frames of dementia, grieving otherwise in The Father, Relic and Supernova

Representing dementia in recent film
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part III|66 pages

Care and control

chapter 10|17 pages

Precarity and dementia

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chapter 12|17 pages

Segregation and incarceration of people living with dementia in care homes

Critical disability and human rights approaches
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chapter 13|15 pages

The carnival is not over

Cultural resistance in dementia care environments
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part IV|95 pages

Forging alliances

chapter 14|17 pages

Convergences, collaborations, and co-conspirators

The radical potentiality of critical disability studies and critical dementia studies
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chapter 15|16 pages

Thinking dementia differently

Dialogues between feminist scholarship and dementia studies
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chapter 16|17 pages

Revolutionising dementia policy and practice

Guidance from ‘the memory girl’, an accomplice
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chapter 18|16 pages

Neurodiversity and dementia

Pitfalls, possibilities and some personal notes
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chapter 19|15 pages

Thinking back and looking ahead

Co-ordinates for critical methodologies in dementia studies
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