ABSTRACT
Worldwide, approximately 60% of persons with a dementia live at home. In many countries, people with a dementia are encouraged to live at home for as long as possible, as it is assumed that quality of life is better at home than in institutions. Citizenship has multiple meanings. It encompasses a wide range of associations and concepts – from citizenship-as-belonging, citizenship-as-practice to recognition and status, as well as ethics and interpersonal relationships. People with a dementia are differentiated in how they respond to the condition, how they negotiate and access services and how they feel about sharing their experiences. Gender aside, public discourse about people with a dementia is changing, certainly in the UK. The chapter shows that there is a value to storytelling for understanding life at home for people with a dementia. It introduces the core ideas and values namely, social citizenship and the ethics of care.
