ABSTRACT
The development of feeding skills is highly complex and involves the interaction of many disparate elements, ranging from anatomical, neurophsyiological and medical factors to those that are social, relational, environmental and cultural. Feeding development is a learned process that relies heavily on oral sensation, motor development and opportunities for experimentation. In trying to learn from Taigh and Tracey’s experiences, it is important to focus not only on what was difficult for them but also on what helped. One of the most striking things about Taigh’s story is the way professionals within the medical system became ‘stuck’. Taigh’s early experiences have contributed to an enhanced self-reliance that can be harnessed to help motivate her in her treatment programme. Professionals need to be able to listen to experiences like Taigh’s if they want to understand more about what is important to young people with chronic conditions.
