ABSTRACT
Necrotizing enterocolitis is a devastating diagnosis for a family to face and may be compounded by a lack of familiarity with this condition. Already struggling with having a child born prematurely, the additional diagnosis of NEC can be overwhelming from a family's perspective. However, by developing a collaborative relationship between all caregivers on the team, as well as through an open style of communication and sharing of information, families can more easily navigate the diagnosis and management of NEC in their child. An important part of this relationship is a society founded by the author, namely the NEC Society, which is a 501(c)(3) dedicated to building a world without NEC through education, advocacy, and research.
