ABSTRACT

Degenerative diseases, in general, have always come with political challenges related to how to overcome them, in connection with policies and procedures. When parents receive expert diagnoses that their children suffer from an illness, life is changed for all involved. Autism, a behavioral disorder that affects growth and development of children, affects family resources, especially for school-age children. Current government policies to accommodate children with special needs – inclusive schools and special curricula – are not yet available. This study aims to explore how caring for a child with autism affects parents. This research is qualitative research, a type of case study research, a social paradigm of universal definition, data collection through observation, interviews, and documentation. Data analysis uses Interactive Miles and Hubermann models.