ABSTRACT
Whereas patients usually “participate” in research studies (e.g., by contributing data), patient “involvement” refers to including patients in the management and conduct of the research itself (e.g., by designing and advising on patient information leaflets and recruitment strategy), defining and prioritizing research questions, and conducting data gathering and analysis. This makes the whole research process more patient-centered. Patient and public involvement (PPI) enables service users, including patients, caregivers, and families to become partners in research rather than just the focus of study. This chapter focuses on understanding the depth and breadth of PPI and how it can positively resonate with patient ergonomics projects to improve processes and outcomes. We describe three case studies from our own experience that demonstrate the value added from PPI. These case studies highlight issues, pragmatics, and the variability about how PPI can be configured. We end with recommendations for planning, preparing, adapting, and learning for those who wish to explore this approach further.
