ABSTRACT
Patients can designate other people to have proxy access to their portals friends, family, children, parents, and caregivers who are necessarily patients themselves. The chapter provides an overview of caregiver-used health information technology that aims to support caregiving experience: personal health record portals that enables caregiver access, a care-coordination apps, and technology-enabled psychosocial support tools for caregivers. A review of medical literature in PubMed published between 1991 and March 2019 done by the first author of this book yielded 26 studies of personal health records or patient portals in which children and young adults were involved. In the twenty-first century, many different civic, political, commercial, and nonprofit agents compete for the attention of consumers in different spheres: in digital and social media markets, and nonprofits like public libraries. Demographically, caregivers are a diverse group spanning age, gender, cultural background, and income categories.
