ABSTRACT
According to the World Health Organization, the term DISABILITY is used broadly to refer to impairments, activity limitations, and participation restrictions that a person may have. It is a complex phenomenon reflecting an interaction between the characteristics of the human organism and the elements of the society in which it lives. Within the family environment, the arrival of a child with a disability leads to changes in family dynamics, because it produces constant emotional stress, influences family interaction, and generates changes and crises in family functions and roles. Historically, the care of those who fulfill the role of the primary caregiver remains in the background and sometimes the need to intervene in the caregiver is not even made visible; the purpose of the present work lies in the recognition that there are different ways of understanding and being understood in this role and therefore different ways of constructing it. Therefore, the importance of giving voice to the narratives of carers and recognizing them as a segment that requires professional intervention, puts on the table a challenge that every day demands new ways of understanding it. This summary is part of an intervention model based on 212Kenneth Gergen’s social constructionism, where, by putting into dialogue the narratives that primary caregivers have about the experience of a child with a disability, the way in which they deconstruct an apparently solid identity such as disability and the elements on which they sustain the construction of their reality. Favoring dialogue between narratives promotes exchange and communication between social actors, offers the possibility of approaching from a closer position to understand the symbolic universe that the conflict situation described represents for them, and provides elements for their intervention.
