ABSTRACT

It is important to recognise that worldwide, depending on the country and the discipline, there is a complex range of terminology describing research partnerships, including authentic engagement, community-partnered participatory research, participatory research, participatory health research, action research, community-based participatory research and co-design. A common component found in all is that the end users of the research product engage in the research process. Authentic engagement and co-creation have been utilised to study and address individual/patient, organisation and/or community-identified issues which build on strengths rather than deficits. In Canada, a framework for engaging individuals/patients, organisations and/or communities is outlined in Chapter 9 of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans. The chapter details primary care researchers to consider this framework as they engage individuals/patients, organisations and/or communities. Research that is co-created brings the best and the latest technology for design and measurement to the strengths, challenges and opportunities for change.