ABSTRACT
A new era of CF care has been forged from developments in diagnosis and management such that there is a remarkable improvement in the health of patients and increased survival.1 With diagnosis commonly occurring in infancy via newborn screening, pediatric aspirations are that children and young people enter adulthood in excellent physical condition and with a good-enough QoL to engage fully in the opportunities of young adulthood. Twenty-rst century cohorts of newborn patients are expected to live into their mid-50s,2 with the further promise of treatments that are mutation-class specic and which address the underlying genetic defects, rendering CF a “plurality” of disease, each constituent with its own trajectory and outcomes. Consequently, for an increasing majority of children and teenagers with CF and their parents, descriptions of their psychosocial well-being published before the millennium are now somewhat redundant.
