ABSTRACT
Helen received a phone call early on Monday morning to say that a specialist would be coming round to our house to discuss the results of Matilda’s heel-prick test. e visit didn’t happen until later that day, allowing for as much deliberation and pacing of the hallway as the tiny Matilda would allow us. e specialist (a nurse from our regional CF center) showed admirable compassion and sensitivity when discussing such awful news with two people whose worlds had been blown apart following the revelation. She advised us that an appointment had been made at the CF center for the following day, at which we could meet the clinicians who would be involved in Matilda’s care. Although the speed of the organization was impressive, this still le an evening for the inevitable but ill-advised Internet homework to take place.
